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Autism

Autism finds a friend on Sesame Street

Karen Weintraub
Special for USA TODAY

A series of new videos from Sesame Street star a Muppet with a magic wand, pink wings and friends with autism.

The videos are part of a new effort aimed at "normalizing" autism, making families with the condition feel included and reducing the bullying that is five times more often aimed at autistic children than neurotypical ones.

Abby the Muppet connects with kids and families who are coping with autism, including Dana.

Although one in 68 American children have autism, the public still doesn’t understand much about the condition, says Jeanette Betancourt, senior vice president of social impact for the Sesame Workshop. Autism is defined by limits in communication and social interactions, as well as repetitive behaviors like rocking or hand flapping.

The videos, available online at sesamestreet.org/autism, show the home life of parents and siblings of children diagnosed on the autism spectrum, emphasizing what makes them "amazing" and what they have in common with the general population. The Sesame Workshop autism project, launched last week, also includes an online storybook, curriculum material, an app and customizable cards to help autistic families map out routines to get through the day.

Ari Ne’eman, president and co-founder of the Autistic Self-Advocacy Network, a group run by and for autistic adults, says he’s thrilled by the effort.

“This is about sending a message that autism is normal and it’s not to be afraid of,” says Ne’eman, adding that many people on the spectrum — like everyone else — grew up watching the TV program. “It’s very powerful to know that autistic children are as welcome on Sesame Street as every other kind of America’s children.”

At Sesame Workshop, the group felt strongly that the videos should not just be about people with autism but made with them, Betancourt says.

So the project also includes an animated video produced by students at Exceptional Minds, a California training program that teaches digital production skills to young adults on the spectrum.

When asked to brainstorm ideas for a video about what it’s like to be autistic, Shane McKaskle, a recent graduate, invented Benny, a little boy with a red rectangular body and just a few spikes of black hair. McKaskle’s fellow students based Benny’s finger-puppet-like friends on different, simple geometric shapes.

In the final animation, Benny talks about how his autism means he doesn’t like the loud music or the games some of his peers play, and he shares that sometimes he’d rather be alone.

But like all kids, Benny wants to have fun.

McKaskle, now a professional designer, is thrilled to have played a role in the animation and to have collaborated with Sesame Street. “I couldn’t be happier,” he says.

The process of watching McKaskle and his peers produce the video was also inspiring for Exceptional Minds’ program director, Ernie Merlán.

Almost by accident, Exceptional Minds focuses on what its students can do rather than what they can’t. Merlán had never worked with autistic people before taking over the program, so he didn’t know what their limitations were supposed to be.

He has been struck, Merlán says, by his students’ raw ability and what they’ve been able to accomplish.

“I think all of us have hidden talents, things we don’t know we’re capable of until we try,” Merlán says.

The Gonzalez family of Bayonne, N.J., also participated in the project.

A pink muppet named Abby introduces sisters Alyssa, 11, Jazlyn, 7, and Yesenia, 6, who is on the autism spectrum. Jazlyn then narrates a four-minute video about the family’s daily life. Their dad, Ricky, also leads his own video about being a supportive parent.

Yesenia doesn’t speak, but she can communicate — using sign language to ask for more water, and the universal language of squirming, frowning and groaning to express how much she hates to have her hair and teeth brushed.

Her mother, Linda Gonzalez, who also appears in the videos, says she wanted to show other families with autism “that they’re not the only ones struggling.”

Some days can be tough, Ricky and Linda Gonzalez concede, but they both try to focus on the positive. They can’t change the autism, Ricky says, but they can control how they react to it.

On her recent sixth birthday, Yesenia blew out her own candles for the first time — leaving her mother in tears. “We actually are enjoying every little thing she does,” Linda says.

Ricky says that when he was young there was a kid in his neighborhood who — he realizes in retrospect — was probably autistic. Back then, the other kids were afraid of him, Ricky says, and families like his were made to feel ashamed.

With Sesame Street’s help, Ricky says, he hopes more people will start seeing autism as just a part of normal life: “We’re all going to know someone with autism.”

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